UPDATE - Miss T came through the surgery the other day wonderfully. It lasted 4 hours, but somehow that went pretty quickly. The doctors/nurses were wonderful about letting us know where they were in the process. They even have a Beads of Courage program for the Congential Heart kids (and a few others like Cancer and Blood defects) and it is really great. They gave us a Beaded necklace with Trinity's name on it and TONS of beads already. I didn't realize until later when I started reading the program that ALL those beads meant something...each bead represent one thing they did to her....the necklace was practically full and this was just during her surgery!
We got to see her for a quick second right after surgery as they were wheeling her across the hall to the Congenital Heart Surgery Unit CHSU and MAN did she have a lot of tubes and wires.
I have to say though that all of her tubes were not as much of a shock as the ICU room she is in. When we walked in I was in SHOCK ....
The Picture above does not even BEGIN to describe how the room felt or really looked. I could not get a picture of all the machines....from floor to ceiling and wall to wall!!!
I say the tubes were not shocking, but I have to admit once we got the covers back...it was a little....
Her room has a lot of huge glass windows and bright lights, and crazy beeping monitors....
but after the shock of it I understand their need to see her like this. In fact each child (there are 12 rooms in this area and all are under Dr Mendeloff) has their own dedicated nurse 24/7. They have these areas right outside each room that each of them sits in so they can see her at all times and there is a monitor stuck in that window too. The curtains won't even go that far to cover it up...so no funny business!
They have been great in allowing me to bring in a few comforts from home for her...her blanket, a small cross (Thanks Acosta family) which I hung from her bed and a hair bow! By the time I got back the 1st day (they sent us home after surgery to try to rest since they would be on her for the next 12 hours constant without leaving the room) they already had this cute knit hat on her with the biggest bow I have ever seen! I will add my own bow once I get over this one..hhehehhe
As of today her heart recovery is going beautifully and on course. The only complication she is having right now is she went in with the Rhinovirus (aggressive cold is how it was explained to us) and she is having to have very aggressive breathing treatments. She is on a breathing tube which she DOES NOT like so they are having to sedate her and also tie her hands down (this is hard to see!). When she wakes up she is a little fussy and she kicks and kicks her covers off. (this is a GOOD sign!)
The virus will most likely keep her in ICU longer than we expected, but things are going well and she has the most EXPENSIVE babysitting we could find!!!! I am headed back to the hospital to relieve Washington so we will update everyone when we can.
Thank you for all the Prayers and Wishes. (Van Eyk family - THANK YOU for sending breakfast and all the fun gifts! The balloons helped brighten the "medical" of the room)
Today was a BIG OL' BOW kind of day....
The Mommy
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